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Developing the evidence base of patient and public involvement in health and social care research: The case for measuring impact

Beresford, Peter; Haywood, Kirstie L.; Staniszewska, Sophie; Adebajo, Ade; Barber, Rosemary; Brady, Louca Mai; Brett, Jo; Elliott, Jim; Evans, David; Jones, David; Mockford, Carole; Nettle, Mary; Rose, Diana; Williamson, Tracey

Authors

Peter Beresford

Kirstie L. Haywood

Sophie Staniszewska

Ade Adebajo

Rosemary Barber

Louca Mai Brady

Jo Brett

Jim Elliott

David Evans David9.Evans@uwe.ac.uk
Professor in Health Services Research

David Jones

Carole Mockford

Mary Nettle

Diana Rose

Tracey Williamson



Abstract

While patient and public involvement (PPI) in health and social care research has progressed successfully in the last decade, a range of difficulties with the evidence base exist, including poor understanding of the concept of impact, limited theorization and an absence of quantitative impact measurement. In this paper, we argue that a paradigm change towards robust measurement of the impact of involvement in research is needed to complement qualitative explorations. We argue that service users should be collaboratively involved in the conceptualization, theorization and development of instruments to measure PPI impact. We consider the key advantages measurement would bring in strengthening the PPI evidence base through a greater understanding of what works, for whom, in what circumstances and why. © 2011 Blackwell Publishing Ltd.

Citation

Haywood, K. L., Beresford, P., Staniszewska, S., Adebajo, A., Barber, R., Brady, L. M., …Williamson, T. (2011). Developing the evidence base of patient and public involvement in health and social care research: The case for measuring impact. International Journal of Consumer Studies, 35(6), 628-632. https://doi.org/10.1111/j.1470-6431.2011.01020.x

Journal Article Type Article
Publication Date Nov 1, 2011
Journal International Journal of Consumer Studies
Print ISSN 1470-6423
Electronic ISSN 1470-6431
Publisher Wiley
Peer Reviewed Peer Reviewed
Volume 35
Issue 6
Pages 628-632
DOI https://doi.org/10.1111/j.1470-6431.2011.01020.x
Keywords public involvement, research, measuring impact
Public URL https://uwe-repository.worktribe.com/output/971741
Publisher URL http://dx.doi.org/10.1111/j.1470-6431.2011.01020.x