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Exploring the cultural validity of rheumatology outcomes

Sanderson, Tessa; Hewlett, Sarah; Calnan, Michael; Morris, Marianne; Raza, Karim; Kumar, Kanta

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Authors

Tessa Sanderson

Michael Calnan

Marianne Morris

Karim Raza

Kanta Kumar



Abstract

In rheumatoid arthritis (RA), the use of a ‘core’ set of treatment outcomes was pioneered to ensure that the same outcomes are measured across all clinical trials to enable comparison of trial results. However, studies have not investigated the influence of patients’ ethnic and cultural background on which treatment outcomes are important from a patient perspective. This pilot study identified 74 treatment outcomes from the female Punjabi RA patients, including 21 new ones that were not identified in previous research with White British RA patients. The social impact of RA created significant additional burden for these Punjabi women, with ‘less stigmatisation’ and ‘improved ability to carry out family duties’ generated as important new outcomes. This study illustrates a need to address cultural validity in outcome elicitation and prioritisation, to ensure interventions are evaluated using criteria that have meaning for people with that condition.

Citation

Sanderson, T., Hewlett, S., Calnan, M., Morris, M., Raza, K., & Kumar, K. (2012). Exploring the cultural validity of rheumatology outcomes. British Journal of Nursing, 21(17), 1015-1023

Journal Article Type Article
Publication Date Sep 27, 2012
Deposit Date Nov 15, 2012
Publicly Available Date Jun 21, 2016
Journal British Journal of Nursing
Print ISSN 0966-0461
Publisher MA Healthcare
Peer Reviewed Peer Reviewed
Volume 21
Issue 17
Pages 1015-1023
Keywords rheumatoid arthritis, culture, ethnicity, qualitative, patient perspective, stigma
Public URL https://uwe-repository.worktribe.com/output/943583
Publisher URL http://www.internurse.com/cgi-bin/go.pl/library/abstract.html?uid=94319

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