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Exploring the cultural validity of rheumatology outcomes

Sanderson, Tessa; Hewlett, Sarah; Calnan, Michael; Morris, Marianne

Authors

Tessa Sanderson

Michael Calnan

Marianne Morris



Abstract

In rheumatoid arthritis (RA), the use of a ‘core’ set of treatment outcomes was pioneered to ensure that the same outcomes are measured across all clinical trials to enable comparison of trial results. However, studies have not investigated the influence of patients’ ethnic and cultural backgrounds on treatment outcomes. This pilot study identified 74 treatment outcomes from female Punjabi RA
patients, including 21 new ones that were not identified in previous research with white British RA patients. The social impact of RA created significant additional burden for these Punjabi women, with ‘less stigmatisation’ and ‘improved ability to carry out family duties’ generated as important new outcomes. This study illustrates a need
to address cultural validity in outcome elicitation and prioritisation, to ensure that interventions are evaluated using criteria that have meaning for people with that condition.

Citation

Sanderson, T., Hewlett, S., Calnan, M., & Morris, M. (2012). Exploring the cultural validity of rheumatology outcomes. British Journal of Nursing, 21(17), 1015-1023

Journal Article Type Article
Publication Date Jan 1, 2012
Journal British Journal of Nursing
Print ISSN 0966-0461
Publisher MA Healthcare
Peer Reviewed Peer Reviewed
Volume 21
Issue 17
Pages 1015-1023
Keywords rheumatology, treatment outcomes, patient perspective, qualitative research, culture
Public URL https://uwe-repository.worktribe.com/output/955602
Publisher URL http://www.internurse.com/cgi-bin/go.pl/library/abstract.html?uid=94319