Skip to main content

Research Repository

Advanced Search

Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes

Fries, James F.; Osborne, Richard H.; Van De Laar, Mart A.; Sanderson, Tessa C.; Leong, Amy L.; Hewlett, Sarah; Kirwan, John R.; Flurey, Caroline A; Newman, Stanton; Ciciriello, Sabina; Richards, Pam; Dures, Emma; Minnock, Patricia; Heiberg, Turid; Montie, Pamela

Authors

James F. Fries

Richard H. Osborne

Mart A. Van De Laar

Tessa C. Sanderson

Amy L. Leong

John R. Kirwan

Profile Image

Caroline Flurey Caroline2.Flurey@uwe.ac.uk
Associate Professor in Men's Health and Long-term Conditions

Stanton Newman

Sabina Ciciriello

Pam Richards

Emma Dures Emma2.Dures@uwe.ac.uk
Professor in Rheumatology and Self-management

Patricia Minnock

Turid Heiberg

Pamela Montie



Abstract

The workshop Choosing or Developing Instruments held at the Outcome Measures in Rheumatology (OMERACT) 10 meeting was designed to help participants think about the underlying methods of instrument development. Conference pre-reading material and 3 brief introductory presentations elaborated the issues, and participants broke into discussion groups before reconvening to share insights, engage in a more general discussion of the issues, and vote on recommendations. Tradeoffs between using current imperfect measures and the long and complex process of developing new instruments were considered, together with the need for rigor in patient-reported outcome (PRO) instrument development. The main considerations for PRO instrument development were listed and a research agenda for action produced. As part of the agenda for action, it is recommended that researchers and patient partners work together to tackle these issues, and that OMERACT bring forward proposals for acceptable instrument development protocols that would meet an enhanced "Truth" statement in the OMERACT Filter. The Journal of Rheumatology Copyright © 2011. All rights reserved.

Citation

Leong, A. L., Sanderson, T. C., Van De Laar, M. A., Osborne, R. H., Fries, J. F., Kirwan, J. R., …Richards, P. (2011). Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes. Journal of Rheumatology, 38(8), 1711-1715. https://doi.org/10.3899/jrheum.110391

Journal Article Type Conference Paper
Acceptance Date May 1, 2011
Publication Date Aug 1, 2011
Journal Journal of Rheumatology
Print ISSN 0315-162X
Electronic ISSN 1499-2752
Publisher Journal of Rheumatology
Peer Reviewed Peer Reviewed
Volume 38
Issue 8
Pages 1711-1715
DOI https://doi.org/10.3899/jrheum.110391
Keywords patient reported outcomes, consensus development, clinical trials
Public URL https://uwe-repository.worktribe.com/output/969631
Publisher URL http://dx.doi.org/10.3899/jrheum.110391