James F. Fries
Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes
Fries, James F.; Osborne, Richard H.; Van De Laar, Mart A.; Sanderson, Tessa C.; Leong, Amy L.; Hewlett, Sarah; Kirwan, John R.; Flurey, Caroline A; Newman, Stanton; Ciciriello, Sabina; Richards, Pam; Dures, Emma; Minnock, Patricia; Heiberg, Turid; Montie, Pamela
Authors
Richard H. Osborne
Mart A. Van De Laar
Tessa C. Sanderson
Amy L. Leong
Sarah Hewlett Sarah.Hewlett@uwe.ac.uk
John R. Kirwan
Caroline Flurey Caroline2.Flurey@uwe.ac.uk
Associate Professor in Men's Health and Long-term Conditions
Stanton Newman
Sabina Ciciriello
Pam Richards
Emma Dures Emma2.Dures@uwe.ac.uk
Professor in Rheumatology and Self-management
Patricia Minnock
Turid Heiberg
Pamela Montie
Abstract
The workshop Choosing or Developing Instruments held at the Outcome Measures in Rheumatology (OMERACT) 10 meeting was designed to help participants think about the underlying methods of instrument development. Conference pre-reading material and 3 brief introductory presentations elaborated the issues, and participants broke into discussion groups before reconvening to share insights, engage in a more general discussion of the issues, and vote on recommendations. Tradeoffs between using current imperfect measures and the long and complex process of developing new instruments were considered, together with the need for rigor in patient-reported outcome (PRO) instrument development. The main considerations for PRO instrument development were listed and a research agenda for action produced. As part of the agenda for action, it is recommended that researchers and patient partners work together to tackle these issues, and that OMERACT bring forward proposals for acceptable instrument development protocols that would meet an enhanced "Truth" statement in the OMERACT Filter. The Journal of Rheumatology Copyright © 2011. All rights reserved.
Citation
Leong, A. L., Sanderson, T. C., Van De Laar, M. A., Osborne, R. H., Fries, J. F., Kirwan, J. R., …Richards, P. (2011). Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes. Journal of Rheumatology, 38(8), 1711-1715. https://doi.org/10.3899/jrheum.110391
Journal Article Type | Conference Paper |
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Acceptance Date | May 1, 2011 |
Publication Date | Aug 1, 2011 |
Journal | Journal of Rheumatology |
Print ISSN | 0315-162X |
Electronic ISSN | 1499-2752 |
Publisher | Journal of Rheumatology |
Peer Reviewed | Peer Reviewed |
Volume | 38 |
Issue | 8 |
Pages | 1711-1715 |
DOI | https://doi.org/10.3899/jrheum.110391 |
Keywords | patient reported outcomes, consensus development, clinical trials |
Public URL | https://uwe-repository.worktribe.com/output/969631 |
Publisher URL | http://dx.doi.org/10.3899/jrheum.110391 |