Fiona Finlay
Planning for the end of children's lives -the lifetime framework
Finlay, Fiona; Lewis, Mary; Lenton, S.; Poon, M.
Authors
Mary Lewis
S. Lenton
M. Poon
Abstract
Aim: This paper describes the development of 'a best practice framework', following review of a sample of notes of children known to the Lifetime Service, where the child has a non-malignant life limiting condition, to improve child and family engagement in the planning process at the end of life. Background: There is very little literature about how to engage with families to decide end of life plans for children with life limiting conditions. Method: An audit of clinical case notes was followed by the development of 'a best practice framework'through a Delphi process involving clinical practitioners. Results: The 3×3 framework is presented to aid communication with parents and children at this difficult time of decision-making. Conclusion: This new framework has been well received by both parents and practitioners, and its use will be audited in the future. © 2008 The Author Journal compilation © 2008 Blackwell Publishing Ltd.
Citation
Finlay, F., Lewis, M., Lenton, S., & Poon, M. (2008). Planning for the end of children's lives -the lifetime framework. Child: Care, Health and Development, 34(4), 542-544. https://doi.org/10.1111/j.1365-2214.2008.00843.x
Journal Article Type | Article |
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Publication Date | Jul 1, 2008 |
Journal | Child: Care, Health and Development |
Print ISSN | 0305-1862 |
Electronic ISSN | 1365-2214 |
Publisher | Wiley |
Peer Reviewed | Not Peer Reviewed |
Volume | 34 |
Issue | 4 |
Pages | 542-544 |
DOI | https://doi.org/10.1111/j.1365-2214.2008.00843.x |
Keywords | end of life care, advanced care planning, children |
Public URL | https://uwe-repository.worktribe.com/output/1025398 |
Publisher URL | http://dx.doi.org/10.1111/j.1365-2214.2008.00843.x |