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Article

Dures, E., Almeida, C., Caesley, J., Peterson, A., Ambler, N., Morris, M., Pollock, J. and Hewlett, S. (2014) A survey of psychological support provision for people with inflammatory arthritis in secondary care in England. Musculoskeletal Care. ISSN 1478-2189 [In Press]

Flurey, C. A., Morris, M., Richards, P., Hughes, R. and Hewlett, S. (2014) “It’s like a juggling act”: Rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes. Rheumatology, 53 (4). pp. 686-695. ISSN 1462-0324

Dures, E., Hewlett, S., Ambler, N., Jenkins, R., Clarke, J. and Gooberman-Hill, R. (2014) Rheumatology clinicians’ experiences of brief training and implementation of skills to support patient self-management. BMC Musculoskeletal Disorders, 15 (3). p. 108. ISSN 1471-2474

Cramp, F. A., Hewlett, S., Almeida, C., Kirwan, J. R., Choy, E., Chalder, T., Pollock, J. and Christensen, R. (2013) Non-pharmacological interventions for fatigue in rheumatoid arthritis (Review). Cochrane Database of Systematic Reviews, 8.

French, T., Hewlett, S., Kirwan, J. and Sanderson, T. (2013) Different wording of the patient global visual analogue scale (PG-VAS) affects rheumatoid arthritis patients’ scoring and the overall disease activity score (DAS28): A cross-sectional study. Musculoskeletal Care. ISSN 1478-2189

Dures, E., Hewlett, S., Cramp, F. A., Greenwood, R., Nicklin, J. K., Urban, M. and Kirwan, J. R. (2013) Reliability and sensitivity to change of the Bristol Rheumatoid Arthritis Fatigue scales. Rheumatology, 52 (10). pp. 1832-1839. ISSN 1462-0324

Sanderson, T., Hewlett, S., Calnan, M., Morris, M., Raza, K. and Kumar, K. (2012) Exploring the cultural validity of rheumatology outcomes. British Journal of Nursing, 21 (17). pp. 1015-1023. ISSN 0966-0461

Dures, E., Kitchen, K., Almeida, C., Ambler, N., Cliss, A., Hammond, A., Knops, B., Morris, M., Swinkels, A. and Hewlett, S. (2012) “They didn’t tell us, they made us work it out ourselves“: Patient perspectives of a cognitive-behavioural programme for rheumatoid arthritis fatigue. Arthritis Care and Research, 64 (4). pp. 494-501. ISSN 2151-4658

Dures, E. and Hewlett, S. (2012) Cognitive–behavioural approaches to self-management in rheumatic disease. Nature Reviews Rheumatology, 8. pp. 553-559. ISSN 1759-4790

Sanderson, T., Hewlett, S., Calnan, M. and Morris, M. (2012) Exploring the cultural validity of rheumatology outcomes. British Journal of Nursing, 21 (17). pp. 1015-1023. ISSN 0966-0461

Hewlett, S., Choy, E. and Kirwan, J. R. (2012) Furthering our understanding of fatigue in rheumatoid arthritis. Journal of Rheumatology, 39 (9). pp. 1775-1777. ISSN 0315-162X

Bartlett, S. and Hewlett, S. (2012) Identifying core domains to assess flare in rheumatoid arthritis: An OMERACT international patient and provider combined Delphi consensus. Annals of Rheumatic Disease, 17 (11). pp. 1855-1860. ISSN 0003-4967

Hewlett, S., Dures, E. and Almeida, C. (2012) Measures of fatigue. Arthritis Care and Research, 63 (S11). S263-S286. ISSN 2151-4658

Waldron, N., Brown, S. J. and Hewlett, S. (2012) "To suddenly have a name for this thing ...was wonderful": The patient's experience of receiving a diagnosis of systemic lupus erythematosus. Musculoskeletal Care, 10 (3). pp. 135-141. ISSN 1478-2189

Sanderson, T., Hewlett, S., Richards, P., Morris, M. and Calnan, M. (2012) Utilising qualitative data from nominal groups: Exploring the influences on treatment outcome prioritization with rheumatoid arthritis patients. Journal of Health Psychology , 17 (1). pp. 132-142. ISSN 1359-1053

Waldron, N., Brown, S., Hewlett, S., Elliott, B., McHugh, N. and McCabe, C. (2011) It's more scary not to know: A qualitative study exploring the information needs of patients with systemic lupus erythematosus at the time of diagnosis. Musculoskeletal Care, 9 (4). pp. 228-238. ISSN 1478-2189

Hewlett, S., Chalder, T., Choy, E., Cramp, F. A., Davis, B., Dures, E., Nicholls, C. and Kirwan, J. R. (2011) Fatigue in rheumatoid arthritis: Time for a conceptual model (Editorial). Rheumatology, 50 (6). pp. 1004-1006. ISSN 1462-0324

Hewlett, S., Sanderson, T., May, J., Alten, R., Bingham, C., Cross, M., March, L., Pohl, C., Woodworth, T. and Bartlett, S. (2011) I’m hurting, I want to kill myself: Rheumatoid arthritis flare is more than a high joint count – an international patient perspective on flare where medical help is sought. Rheumatology, 51 (1). pp. 69-76. ISSN 1462-0324

Hewlett, S., Ambler, N., Almeida, C., Cliss, A., Hammond, A., Kitchen, K., Knops, B., Pope, D., Spears, M., Swinkels, A. and Pollock, J. (2011) Self-management of fatigue in rheumatoid arthritis: A randomised controlled trial of group cognitive-behavioural therapy. Annals of Rheumatic Disease, 70 (6). pp. 1060-1067. ISSN 0003-4967

De Witt, M., Berlo, S., Aanerud, G., Aletaha, D., Bijlsma, L., Croucher, L., Da Silva, J., Glusing, B., Gossec, L., Hewlett, S., Jongkees, M., Magnusson, D., Scholte-Voshaar, M., Richards, P., Ziegler, C. and Abma, T. (2011) EULAR recommendations for the inclusion of patient representatives in scientific projects: A EULAR initiative. Annals of Rheumatic Disease, 70. pp. 722-726. ISSN 0003-4967

Alten, R., Pohl, C., Christensen, R. and Hewlett, S. (2011) Identifying preliminary domains to detect and measure Rheumatoid Arthritis Flares: Report of the OMERACT 10 RA Flare Workshop. Journal of Rheumatology, 38 (8). pp. 1751-1758. ISSN 0315-162X

Lack, S. and Hewlett, S. (2011) Men’s experiences of rheumatoid arthritis: An inductive thematic analysis. Musculoskeletal Care, 9 (2). pp. 102-112. ISSN 1478-2189

Kirwan, J. R., Boonen, A. and Hewlett, S. (2011) OMERACT 10 patient perspective virtual campus: Valuing health; measuring outcomes in RA fatigue, sleep, arthroplasty, systemic sclerosis; and the clinical significance of changes in health. Journal of Rheumatology, 38 (8). pp. 1728-1734. ISSN 0315-162X

Kirwan, J. R., Fries, J., Hewlett, S., Osborne, R., Newman, S., Ciciriello, S., van de Laar, M., Dures, E., Minnock, P., Heiberg, T., Sanderson, T., Flurey, C., Leong, A., Montie, P. and Richards, P. (2011) Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient reported outcomes. Journal of Rheumatology, 38 (8). pp. 1711-1715. ISSN 0315-162X

Kirwan, J. R., Fries, J. and Hewlett, S. (2011) Patient perspective: Choosing or developing instruments. Journal of Rheumatology, 38 (8). pp. 1716-1719. ISSN 0315-162X

Wylde, V. and Hewlett, S. (2011) Persistent pain after joint replacement: Prevalence, sensory qualities and post-operative determinants. Pain, 152 (3). pp. 566-572. ISSN 0304-3959

Sanderson, T., Morris, M., Calnan, M., Richards, P. and Hewlett, S. (2011) Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis. Sociology of Health and Illness, 33 (4). pp. 618-633. ISSN 1467-9566

Sanderson, T., Hewlett, S., Flurey, C. and Dures, E. (2011) The impact triad (severity, importance and self-management) as a method of enhancing the measurement of the personal life impact of rheumatic diseases. Journal of Rheumatology, 38 (2). pp. 191-194. ISSN 0315-162X

Nicklin, J., Cramp, F. A., Kirwan, J. R., Urban, M. and Hewlett, S. (2010) Collaboration with patients in the design of patient reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis. Arthritis Care & Research, 62 (11). pp. 1552-1558. ISSN 0004-3591

Sanderson, T., Morris, M., Calnan, M., Richards, P. and Hewlett, S. (2010) Patient perspective of measuring treatment efficacy: The Rheumatoid Arthritis Patient Priorities for Pharmacological Interventions (RAPP-PI) outcomes. Arthritis Care & Research, 62 (5). pp. 647-656. ISSN 0004-3591

Sanderson, T., Morris, M., Calnan, M., Richards, P. and Hewlett, S. (2010) What outcomes from pharmacological treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set. Arthritis Care & Research, 62 (5). pp. 640-646. ISSN 0004-3591

Wylde, V., Livesey, C., Learmonth, I. D., Blom, A. W. and Hewlett, S. (2010) Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in Osteoarthritis. Musculoskeletal Care , 8 (2). pp. 87-98. ISSN 1478-2189

Almeida, C., Hewlett, S., Kirwan, J. R., Cramp, F. A., Chalder, T. and Choy, E. (2010) Biologic interventions for fatigue in rheumatoid arthritis. Cochrane Database of Systematic Reviews, 1 (CD0083).

Sanderson, T., Morris, M., Calnan, M., Richards, P. and Hewlett, S. (2010) ‘It’s this whole picture, this well-being’: patients’ understanding of ‘feeling well’ with rheumatoid arthritis. Chronic Illness, 6 (3). pp. 228-240. ISSN 1742-3953

Nicklin, J., Cramp, F. A., Kirwan, J. R., Urban, M. and Hewlett, S. (2010) Measuring fatigue in RA: Evaluation of the Bristol RA fatigue multi-dimensional questionnaire, visual analogue and numerical rating scales (BRAF). Arthritis Care & Research, 63 (511). S263-S286. ISSN 0004-3591

Hale, E. D., Morris, M., Hewlett, S., Treharne, G. J. and Kitas, G. D. (2010) Meeting the needs of children of parents with chronic inflammatory musculoskeletal diseases (Editorial). Rheumatology, 50 (3). pp. 431-433. ISSN 1462-0324

Hewlett, S., Almeida, C., Kirwan, J., Cramp, F. A., Choy, E. and Chalder, T. (2010) Non-pharmacological interventions for fatigue in rheumatoid arthritis (Protocol). Cochrane Database of Systematic Reviews . ISSN 1469-493X

Matheson, L., Harcourt, D. and Hewlett, S. (2010) ‘Your whole life, your whole world, it changes’: Partners' experiences of living with rheumatoid arthritis. Musculoskeletal Care , 8 (1). pp. 46-54. ISSN 1478-2189

Bingham, C., Pohl, C., Woodworth, T., Hewlett, S., May, J., Rahman, M., Witter, J., Furst, D., Strand, V., Boers, M. and Alten, R. (2009) Developing a standardized definition for disease “flare” in rheumatoid arthritis (OMERACT 9 Special Interest Group). The Journal of Rheumatology, 36 (10). pp. 2335-2341. ISSN 0315-162x

Bingham, C., Pohl, C., Alten, R., Christensen, R., Choy, E., Hewlett, S., May, J., Strand, V., Woodworth, T. and Furst, D. (2009) “Flare” and disease worsening in rheumatoid arthritis: Time for a definition. International Journal of Advances in Rheumatology, 7 (3). pp. 85-91.

Kirwan, J. R., Newman , S., Tugwell, P., Wells, G., Hewlett, S., Idzera, L., Laslo, B., March, L., Minnock, P., Montie, P., Nicklin, J., Rader, T., Richards, P., Sanderson, T., Suarez-Almazor, M., Tanjong-Ghogomu, E., Ueffing, E. and Welch, V. (2009) Progress on incorporating the patient perspective in outcome assessment in rheumatology and the emergence of life impact measures at OMERACT 9. Journal of Rheumatology, 36 (9). pp. 2071-2076. ISSN 0315-162X

Sanderson, T., Calnan, M., Morris, M., Richards, P. and Hewlett, S. (2009) The impact of patient-perceived restricted access to anti-TNF therapy for rheumatoid arthritis: A qualitative study. Musculoskeletal Care, 7 (3). pp. 194-209. ISSN 1478-2189

Wylde, V., Blom, A., Dieppe, P., Hewlett, S. and Learmonth, I. (2009) Return to sporting activities after joint replacement. Journal of Bone and Joint Surgery, 90-B (7). pp. 920-923. ISSN 0301-620X

Repping-Wutts, H., Hewlett, S., Van Riel , P. and Van Achterberg, T. (2009) Fatigue in patients with rheumatoid arthritis: British and Dutch nurses’ knowledge, attitude and management. Journal of Advanced Nursing, 65 (4). pp. 901-911. ISSN 0309-2402

Sanderson, T., Calnan, M., Morris, M., Richards, P. and Hewlett, S. (2009) The impact of restricted access to anti-TNF therapy on people with rheumatoid arthritis: A qualitative study. Musculoskeletal Care, 7 (3). pp. 194-209. ISSN 1478-2189

Wylde, V., Livesey, C., Learmonth, I., Hewlett, S. and Blom, A. (2008) Perceptions of physiotherapy provision of 2085 patients following primary joint replacement. Physiotherapy, 94 (4). pp. 317-319. ISSN 0031-9406

Hewlett, S., Nicklin, J. and Treharne, G. J. (2008) Fatigue in musculoskeletal conditions. Topical Reviews: Reports on the Rheumatic Diseases Series 6 , Autumn (Number). ISSN 1469-3097

Radford, S., Carr, M., Hehir, M., Davis, B., Robertson, L., Cockshott, Z., Tipler, S. and Hewlett, S. (2008) "It's quite hard to grasp the enormity of it": Perceived needs of people upon diagnosis of rheumatoid arthritis. Musculoskeletal Care, 6 (3). pp. 155-167. ISSN 1478-2189

Hewlett, S., Clarke, B., O'Brien, A., Hammond, A., Ryan, S., Kay, L., Richards, P. and Almeida, C. (2008) Rheumatology education for undergraduate nursing, physiotherapy and occupational therapy students in the UK: Standards, challenges and solutions. Rheumatology, 47 (7). pp. 1025-1030. ISSN 1462-0324

Repping-Wutts, J. W. J., Hewlett , S., Van Riel, P. and Van Achterberg, T. (2008) Vermoeidheid bij patiënten met reumatoïde artritis: Kennis, houding en huidige zorgverlening door Britse en Nederlandse verpleegkundigen. Dutch Journal of Rheumatology, 2. pp. 65-71.

Hehir, M., Carr, M., Davis, B., Radford, S., Robertson, L., Tipler, S. and Hewlett, S. (2008) Nursing support at the onset of rheumatoid arthritis: Time and space for emotions, practicalities and self-management. Musculoskeletal Care , 6 (2). pp. 124-134. ISSN 1478-2189

Hewlett, S., Cockshott, Z., Almeida, C., Richards, P., Lowe, R., Greenwood, R. and Kirwan, J. and the RASE Study Group (2008) Sensitivity to change of the RA Self-Efficacy scale (RASE) and predictors of change in self-efficacy. Musculoskeletal Care, 6 (1). pp. 49-67. ISSN 1478-2189

Lowe, R., Cockshott, Z., Greenwood, R., Kirwan, J., Almeida, C., Richards, P. and Hewlett, S. (2008) Self-efficacy as an appraisal that moderates the coping-emotion relationship: Associations among people with rheumatoid arthritis. Psychology & Health, 23 (2). pp. 155-174. ISSN 1476-8321

Wylde, V., Dieppe, P., Hewlett, S. and Learmonth, I. (2007) Total knee replacement: Is it really an effective procedure for all? The Knee, 14 (6). pp. 417-423. ISSN 0968-0160

Hewlett, S. (2007) Fatigue in rheumatoid arthritis: From apathy to action. Future Rheumatology, 2 (5). pp. 439-442. ISSN 1746-0816

Kirwan, J. R. and Hewlett, S. (2007) Patient perspective workshop: Reasons and methods for measuring fatigue in rheumatoid arthritis. Journal of Rheumatology, 34. pp. 1171-1173. ISSN 0315-162X

Kirwan, J. R., Minnock, P., Adebajo, A., Bresnihan, B., Choy, E., De Wit, M., Hazes, M., Richards, P., Saag, K., Suarez-Almazor, M., Wells, G. and Hewlett, S. (2007) Patient perspective workshop: Fatigue as a recommended patient-centred outcome measure in rheumatoid arthritis. Journal of Rheumatology, 34 (5). pp. 1174-1177. ISSN 0315-162X

Hewlett, S., Hehir, M. and Kirwan, J. R. (2007) Measuring fatigue in rheumatoid arthritis: A systematic review of scales in use. Arthritis & Rheumatism, 57 (3). pp. 429-439. ISSN 0004-3591

Wylde, V., Hewlett, S., Learmonth, I. and Cavendish, V. (2006) Personal impact of disability in osteoarthritis: Patient, professional and public values. Musculoskeletal Care , 4 (3). pp. 152-166. ISSN 1478-2189

Hewlett, S., De Wit, M., Richards, P., Quest, E., Hughes, R., Heiberg, T. and Kirwan, J. R. (2006) Patients and professionals as research partners: Benefits, challenges and practicalities. Arthritis & Rheumatism (Arthritis Care & Research), 55 (4). pp. 676-680. ISSN 0893-7524

Almeida, C., Clarke, B., O'Brien, A., Hammond, A., Ryan, S., Kay, L. and Hewlett, S. (2006) Current provision of rheumatology education for undergraduate nursing, physiotherapy and occupational therapy students in the UK. Rheumatology, 45 (7). pp. 868-873. ISSN 1462-0324

Brown, S., McCabe, C., Hewlett, S., McDowell, J., Cushnaghan, J., Breslin, A., Stafford, S. and Carmichael, C. (2006) Rheumatology telephone helplines: Patient and health professionals requirements. Musculoskeletal Care, 4 (1). pp. 24-37. ISSN 1478-2189

Pope, D., Tipler, S., Kirwan, J. R. and Hewlett, S. (2005) Implementing a patient-led service for chronic conditions. Nursing Times, 101 (49). pp. 28-31. ISSN 0954-7762

Kirwan, J. R., Hewlett, S., Heiberg, T., Hughes, R., Carr, M., Hehir, M., Kvien, T., Minnock, P., Newman, S., Quest, E., Taal, E. and Wale, J. (2005) Incorporating the patient perspective into outcome assessment in rheumatoid arthritis: Progress at OMERACT 7. Journal of Rheumatology, 32. pp. 2250-2256. ISSN 0315-162X

Kirwan , J. R., Ahlmen, M., de Wit, M., Heiberg, T., Hehir, M., Hewlett, S., Katz, P., Minnock, P., Quest, E. and Richards, P. (2005) Progress since OMERACT 6 on including the patient perspective in rheumatoid arthritis outcome assessment. Journal of Rheumatology, 32 (11). pp. 2246-2249. ISSN 0315-162X

Hewlett, S., Cockshott, Zoë, Byron, M., Kitchen, K., Tipler, S., Pope, D. and Hehir, M. (2005) Patients' perceptions of fatigue in rheumatoid arthritis: Overwhelming, uncontrollable, ignored. Arthritis & Rheumatism, 53 (5). pp. 697-702. ISSN 0004-3591

Hewlett, S., Carr, M., Ryan, S., Kirwan, J. R., Richards, P., Carr, A. and Hughes, R. (2005) Outcomes generated by patients with rheumatoid arthritis: How important are they? Musculoskeletal Care , 3 (3). pp. 131-142. ISSN 1478-2189

Kirwan, J. R., Hewlett, S., Cockshott, Z. and Barrett, J. (2005) Clinical and psychological outcomes in a randomised controlled clinical trial of patient education in rheumatoid arthritis. Musculoskeletal Care , 3 (1). pp. 1-16. ISSN 1478-2189

Hewlett, S., Kirwan, J. R., Pollock, J., Mitchell, K., Hehir, M., Blair, P., Memel, D. and Perry, M. (2005) Patient initiated outpatient follow up in rheumatoid arthritis: Six year randomised controlled trial. British Medical Journal (BMJ), 330 (7484). pp. 171-175. ISSN 0959-8138

Powell, J., Langley, C., Kirwan, J. R., Gubbay, D., Memel, D., Pollock, J., Means, R. and Hewlett, S. (2004) Welfare rights services for people disabled with arthritis integrated in primary care and hospital settings: Set-up costs and monetary benefits. Rheumatology, 43 (9). pp. 1167-1172. ISSN 1462-0324

Langley, C., Memel, D., Kirwan, J. R., Pollock, J., Hewlett, S., Gubbay, D. and Powell, J. (2004) Using the Health Assessment Questionnaire and welfare benefits advice to help people disabled through arthritis to access financial support. Rheumatology, 43 (7). pp. 863-868. ISSN 1462-0324

Hewlett, S. (2003) Consent to research in arthritis: Quantity of information versus quality (Invited Editorial). Arthritis and Rheumatism (Arthritis Care and Research), 49 (3). pp. 281-282. ISSN 0004-3591

Wells, G., Anderson, J., Boers, M., Felson, D., Heilberg, T., Hewlett, S., Johnson, K., Kirwan, J. R., Lassere, M., Robinson, V., Shea, B., Simon, L., Strand, V., Van Riel, P. and Tugwell, P. (2003) MCID/Low disease activity state workshop: Summary, recommendations and research agenda. Journal of Rheumatology, 30 (5). pp. 1115-1118. ISSN 0315-162X

Kirwan, J. R., Heidberg, T., Hewlett, S., Hughes, R., Kvien, T., Ahlmen, M., Boers, M., Minnock, P., Saag, K., Shea, B., Suarez Almazor, M. and Taal, E. (2003) Outcomes from the patient perspective workshop at OMERACT 6. Journal of Rheumatology, 30 (4). pp. 868-872. ISSN 0315-162X

Hewlett, S. (2003) Patients and clinicians have different perspectives on outcomes in arthritis. Journal of Rheumatology, 30 (4). pp. 877-879. ISSN 0315-162X

Carr, A., Hewlett, S., Hughes, R., Mitchell, H., Ryan, S., Carr, M. and Kirwan, J. R. (2003) Rheumatology outcomes: The patient's perspective. Journal of Rheumatology, 30 (4). pp. 880-883. ISSN 0315-162X

Kirwan, J. R., Mitchell, K., Hewlett, S., Hehir, M., Pollock, J., Memel, D. and Bennett, B. (2003) Clinical and psychological outcome from a randomized controlled trial of patient-initiated direct-access hospital follow-up for rheumatoid arthritis extended to 4 years. Rheumatology, 42. pp. 422-426. ISSN 1462-0324

Hewlett, S., Smith, A. and Kirwan, J. R. (2002) Measuring the meaning of disability in rheumatoid arthritis: The Personal Impact Health Assessment Questionnaire (PI HAQ). Annals of Rheumatic Disease, 61 (11). pp. 986-993. ISSN 0003-4967

Memel, D., Kirwan, J. R., Langley, C., Hewlett, S. and Hehir, M. (2002) Prediction of succcessful application for disability benefits using the Health Assessment Questionnaire for people with arthritis. Rheumatology, 41 (1). pp. 100-102. ISSN 1462-0324

Hewlett, S., Cockshott, Z., Kirwan, J. R., Barrett, J., Stamp, J. and Haslock, I. (2001) Development and validation of a self-efficacy scale for use in British patients wih rheumatoid arthritis (RASE). Rheumatology, 40 (11). pp. 1221-1230. ISSN 1462-0324

Hewlett, S., Smith, A. and Kirwan, J. R. (2001) Values for function in rheumatoid arthritis: Patients, professionals and public. Annals of the Rheumatic Diseases (ARD), 60 (10). pp. 928-933. ISSN 0003-4967

Hehir, M., Hewlett, S., Mitchell, K., Kirwan, J. R., Memel, D., Pollock, J. and Bennett, B. (2001) What happens in rheumatoid arthritis outpatient clinics? Rheumatology, 40 (S1). S140. ISSN 1462-0324

Hewlett, S., Kirwan, J. R., Mitchell, K., Hogg, J., Korendovych, E. and Paine, T. (2000) Patient-initiated hospital follow-up for rheumatoid arthritis. Rheumatology, 39. pp. 990-997. ISSN 1462-0324

McCabe, C., MacDowell, J., Cushnaghan, J., Butts, S., Hewlett, S., Stafford, S., O'Hea, J. and Breslin, A. (2000) Rheumatology telephone helplines: An activity analysis. Rheumatology, 39. pp. 1390-1395. ISSN 1462-0324

Hewlett, S. (1997) Rheumatology - the whole is more than the sum of the parts. Rheumatology, 36 (11). pp. 1142-1143. ISSN 1462-0324

Hewlett, S. (1996) Consent to clinical research - adequately voluntary or substantially influenced? Journal of Medical Ethics, 22. pp. 232-237. ISSN 0306-6800

Hewlett, S. (1996) Is consent to participate in research voluntary? Arthritis Care & Research, 9 (5). pp. 400-404. ISSN 0004-3591

Hewlett, S. and Kirwan, J. R. (1995) Dissatisfaction with function in rheumatoid arthritis. Quality of Life, 4. p. 8.

Hewlett, S., Young, P. and Kirwan, J. R. (1995) Dissatisfaction, disability and rheumatoid arthritis. Arthritis Care & Research, 8 (1). pp. 4-9. ISSN 0004-3591

Hewlett, S., Haynes, J., Shepstone, L. and Kirwan, J. R. (1995) Rheumatoid arthritis patients cannot accurately report signs of inflammatory activity. Rheumatology, 34. pp. 547-553. ISSN 1462-0324

Hewlett, S. (1994) Patients' views of changing disability. Nursing Standard, 8 (31). pp. 25-29. ISSN 0029-6570

Hewlett, S. (1991) Using unproven remedies in arthritis. Nursing Times, 87. pp. 49-50. ISSN 0954-7762

Book Section

McCabe, C., Haigh, R., Cohen, H. and Hewlett, S. (2013) Pain and fatigue. In: Watts, R., Conaghan, P., Denton, C., Foster, H., Isaacs, J. and Muller-Ladner, U., eds. (2013) Oxford Textbook of Rheumatology. 4th. Oxford: Oxford University Press. ISBN 9780199642489

Conference or Workshop Item

Flurey, C. A., Morris, M., Pollock, J., Richards, P., Hughes, R. and Hewlett, S. (2013) RA flares: Inflammatory or avalanche? In: 2013 American College of Rheumatology Conference - San Diego, CA, San Diego, CA, 26th-30th Oct.

Flurey, C. A., Morris, M., Pollock, J., Richards, P., Hughes, R. and Hewlett, S. (2013) RA flares: Inflammatory or avalanche? In: EULAR, Madrid, 12th-15th June.

Flurey, C. A., Morris, M., Pollock, J., Hughes, R., Hewlett, S. and Richards, P. (2013) RA flares: Inflammatory or avalanche? In: BSR/BHPR, Birmingham, 23rd-25th April 2013.

Flurey, C. A., Morris, M., Pollock, J., Hughes, R., Richards, P. and Hewlett, S. (2012) Will I waste your time? Delays in help-seeking for RA flares. In: ACR/ARHP, 10-14 November, 2012, Washington DC, USA, Washington, USA, 10-14 November 2012.

Flurey, C. A., Morris, M., Pollock, J., Hughes, R., Richards, P. and Hewlett, S. (2012) "It gets me down every single day": Are men with rheumatoid arthritis getting the support they need? In: ACR/ARHP, Washington DC, USA, 9-14th November, 2012. Washington DC, USA: UNSPECIFIED

Flurey, C. A., Morris, M., Pollock, J., Hughes, R., Richards, P. and Hewlett, S. (2012) Will I waste your time? Delays in help-seeking for RA flares. In: EULAR, Berlin, Germany, 6-9 June, 2012.

Flurey, C. A., Morris, M., Pollock, J., Hughes, R., Richards, P. and Hewlett, S. (2012) Will I waste your time? Delays in help-seeking for RA flares. In: BSR/BHPR Conference 2012, Glasgow, UK, 1-3 May 2012, Glasgow, UK, 1-3 May 2012. Glasgow, UK: UNSPECIFIED

Flurey, C. A., Morris, M., Pollock, J., Hughes, R., Richards, P. and Hewlett, S. (2012) “You make your own luck”: Three different perceptions of living with RA: A Q-methodological study. In: BSR/BHPR, Glasgow, UK, 1-3 May, 2012. Glasgow, UK: UNSPECIFIED

Flurey, C. A., Morris, M., Pollock, J., Hughes, R. and Hewlett, S. (2011) The patient experience of daily life and flare with rheumatoid arthritis. In: BSR/BHPR, Birmingham, Birmingham, 23-25 April 2011.

Sanderson, T., Calnan, M., Morris, M., Richards, P. and Hewlett, S. (2009) The use of nominal groups to develop a patient-generated core set of treatment outcomes in rheumatoid arthritis. In: American College of Rheumatology, Philadelphia, USA, October 2009, Philadelphia, October 2009.

Sanderson, T., Calnan, M., Morris, M., Richards, P. and Hewlett, S. (2009) Well-being and normality in rheumatoid arthritis (RA): narratives of age, gender and ‘personhood’. In: Medical Sociology Group Annual Conference, Manchester, UK, 3-5 September 2009, Manchester, UK, 3-5 September, 2009.

Sanderson, T., Morris, M., Calnan, M. and Hewlett, S. (2009) The biopsychosocial factors affecting patients’ treatment outcome prioritisation in rheumatoid arthritis (RA). In: Medical Sociology Conference, Liverpool UK, 3 September 2009, Liverpool, UK, 3 September, 2009.

Sanderson, T., Calnan, M., Morris, M., Richards, P. and Hewlett, S. (2009) The role of a patient research partner in a qualitative study about the meaning of well-being in rheumatoid arthritis. In: Medical Sociology Group Annual Conference, Manchester, UK, 3-5 September, 2009.

Sanderson, T., Calnan, M., Morris, M., Richards, P. and Hewlett, S. (2009) Using grounded theory with mixed methods: an example of a pragmatic study in rheumatology. In: Medical Sociology Conference, Liverpool, UK, 1 September 2009, Liverpool, UK, 1 September, 2009.

Sanderson, T., Richards, P. and Hewlett, S. (2009) Rheumatoid arthritis (RA) patients as experts: Using nominal groups to develop a patient-generated core set of treatment outcomes. In: Science and the Public Conference, Manchester, UK, 1 June 2009, Manchester, UK, 1 June 2009.

Matheson, L., Harcourt, D. and Hewlett, S. (2009) Partners’ experiences of living with rheumatoid arthritis: “Your whole life, your whole world, it changes". In: British Society of Rheumatology Conference, Glasgow, Scotland, 1 April 2009, Glasgow, Scotland, 1 April 2009.

Nicklin, J., Kirwan, J., Cramp, F. A. and Hewlett, S. (2009) Development and initial validation of short scales to measure severity, effect and ability to cope with fatigue in RA. In: British Society of Rheumatology, Glasgow, UK, April 2009, Glasgow, UK, April 2009.

Nicklin, J., Cramp, F. A., Kirwan, J. and Hewlett, S. (2009) Development and initial validation of the Bristol RA fatigue multi-dimensional scale (BRAF-MDQ). In: British Society of Rheumatology Conference, Glasgow, UK, 1 April 2009, Glasgow, UK, 1 April 2009.

Sanderson, T., Morris, M., Calnan, M., Richards, P. and Hewlett, S. (2009) Managing life with rheumatological conditions: Well-being. In: British Society for Rheumatology Conference, Liverpool, UK, April 2009, Liverpool, UK, April 2009. Liverpool, UK: UNSPECIFIED

Sanderson, T., Morris, M., Calnan, M., Richards, P. and Hewlett, S. (2008) Developing a patient-generated core set of treatment outcomes in rheumatoid arthritis (RA): Using nominal groups with patients to prioritise outcomes of pharmacological interventions. In: American College of Rheumatology Conference, San Fransisco, USA, October 2008, San Fransisco, USA, October 2008.

Nicklin, J., Cramp, F. A., Kirwan, J. and Hewlett, S. (2008) Using “Think Aloud” to improve questionnaire design. In: American College of Rheumatology Conference, San Francisco, USA, October 2008, San Francisco, USA, October 2008.

Nicklin, J., Cramp, F. A., Kirwan, J. and Hewlett, S. (2008) Do existing scales capture the multi-dimensional aspects of rheumatoid arthritis fatigue? In: American College of Rheumatology Conference, San Francisco, USA, October 2008, San Francisco, USA, October 2008.

Sanderson, T., Calnan, M., Morris, M., Richards, P. and Hewlett, S. (2008) Defining well-being in rheumatoid arthritis: Potential outcomes for a patient generated core set. In: British Rheumatology Society Conference, Liverpool, UK, 22-25 April, 2008, Liverpool, UK, 22 - 25 April 2008.

Hehir, M., Clarke, B., Beer, E., Thwaites, C. and Hewlett, S. (2008) I don’t actually know an awful lot: Student nurses’ knowledge and attitudes about arthritis. In: British Society of Rheumatology Annual Scientific Meeting, Liverpool, UK, 22nd - 25th April, 2008.

Cliss, A., Ambler, N., Knops, B., Swinkels, A., Hammond, A., Kitchen, K., Pollock, J., Pope, D. and Hewlett, S. (2008) Patient views on factors affecting fatigue in rheumatoid arthritis: Implications for clinical practice. In: British Society of Rheumatology Annual Scientific Meeting, Liverpool, UK, 22nd - 25th April, 2008.

Sanderson, T., Calnan, M., Morris, M., Richards, P. and Hewlett, S. (2008) Positive experiences of living with rheumatoid arthritis: Social and personal growth link to adaptation. In: British Rheumatology Society Conference, Liverpool, UK, 22-25 April, 2008, Liverpool, UK, 22 - 25 April 2008.

Repping-Wuts, H. and Hewlett, S. (2008) Rheumatoid arthritis fatigue: Nurses are sympathetic but uncertain about practice. In: British Society of Rheumatology Annual Scientific Meeting, Liverpool, UK, 22nd - 25th April, 2008.

Nicklin, J., Cramp, F. A., Kirwan, J. and Hewlett, S. (2008) Standardizing visual analogue scales to measure fatigue in rheumatoid arthritis. In: British Society of Rheumatology Annual Scientific Meeting, Liverpool, UK, 22nd - 25th April, 2008.

Hewlett, S., Clarke, B., O'Brien, A., Hammond, A., Ryan, S., Kay, L., Richards, P. and Almeida, C. (2008) Standards, challenges and solutions: Development of a rheumatology core teaching set for undergraduate health professionals. In: British Society of Rheumatology Annual Scientific Meeting, Liverpool, UK, 22nd - 25th April, 2008.

Sanderson, T., Calnan, M., Morris, M., Richards, P. and Hewlett, S. (2008) The role of identity in well-being and normality on rheumatoid arthritis: Narratives of age, gender and 'personhood'. In: British Rheumatology Society Conference, Liverpool, UK, 22-25 April 2008, Liverpool, UK, 22 - 25 April 2008.

Sanderson, T., Calnan, M., Morris, M., Richards, P. and Hewlett, S. (2008) Measuring well-being in rheumatoid arthritis (RA): The development of five well-being numerical rating scales (NRS). In: British Society of Rheumatology, Glasgow, Scotland, April, 2008.

Sanderson, T., Calnan, M., Morris, M., Richards, P. and Hewlett, S. (2008) Rheumatoid arthritis patients’ interpretation of the DAS patient global used at Bristol Royal Infirmary. In: British Society of Rheumatology Conference, Glasgow, Scotland, April 2008, Glasgow, Scotland, April, 2008.

Jenkins, L., Hehir, M., Carr, M., Radford, S., Davis, B. and Hewlett, S. (2007) Emotions and beliefs upon diagnosis of rheumatoid arthritis. In: BSR/BHPR International Conference, Birmingham, UK, 10th May, 2007.

O'Brien, A., Hewlett, S., Clarke, B., Hammond, A., Ryaan, S., Kay, L. and Almeida, C. (2007) What inspires junior health professionals to become rheumatology specialists?: A survey questionnaire. In: BSR/BHPR International Conference, Birmingham, UK, 10th May, 2007.

Tasker, A., Learmonth, I., Wylde, V. and Hewlett, S. (2007) Personal impact of disability in osteoarthritis: Validation of the PI HAQ. In: BSR/BHPR International Conference, Birmingham, UK, 8th May, 2007.

Radford, S., Carr, M., Hehir, M., Davis, B., Robertson, L., Cockshott, Z., Tipler, S. and Hewlett, S. (2006) Supporting people newly-diagnosed with rheumatoid arthritis: Information is not enough. In: BSR/BHPR Conference, Glasgow, Scotland, 4th May, 2006.

Lowe, R., Cockshott, Z., Almeida, C., Richards, P., Greenwood, R., Kirwan, J. R. and Hewlett, S. and RASE Study Group (2006) Associations between changes in self-efficacy appraisals, coping and emotions in rheumatoid arthritis. In: BSR/BHPR Conference, Glasgow, Scotland, 3rd May, 2006.

Almeida, C., Clarke, B., O'Brien, A., Hammond, A., Ryan, S., Kay, L., Richards, P. and Hewlett, S. (2006) NHS research and development procedures: Seeking a standard answer. In: BSR/BHPR Conference, Glasgow, Scotland, 3rd May, 2006.

Almeida, C., Clarke, B. and Hewlett, S. (2006) Current provision of rheumatology education for undergraduate nursing students in the UK. In: RCN International Research Conference, York, UK, 21st March, 2006.

Hewlett, S. (2006) Developing research in rheumatology nursing: Fatigue in rheumatoid arthritis (RA). In: RCN International Research Conference, York, UK, 21st March, 2006.

Hehir, M., Carr, M., Davis, B., Radford, S., Robertson, L., Tipler, S. and Hewlett, S. (2006) Nurse-led clinics to support patient newly-diagnosed with rheumatoid arthritis: Time and space, not just information. In: RCN International Research Conference, York, UK, 21st March, 2006.

Hewlett, S., Kirwan, J. R. and Richards, P. (2006) A model for collaboration between researchers and patients. In: RCN International Research Conference, York, UK, 21st March, 2006.

Hewlett, S., Cockshott, Z., Almeida, C., Richards, P., Lowe, R., Greenwood, R. and Kirwan, J. R. (2005) Sensitivity to change of the rheumatoid arthritis self-efficacy scale (RASE). In: American College of Rheumatology Annual Conference, San Diego, USA, November 2005, San Diego, USA, 1st November, 2005.

Lowe, R., Hewlett, S., Cockshott, Z., Almeida, C., Richards, P. and Kirwan, J. R. and RASE Study Group (2005) Changes in self-efficacy, coping and emotions: Their associations among rheumatoid arthritis patients participating in routine self-management programmes. In: European Health Psychology Society Annual Conference, Galway, Ireland, October 2005, Galway, Ireland, 1st October, 2005.

Hewlett , S., Cockshott, Z., Byron, M., Kitchen, K., Tipler, S., Pope, D. and Hehir, M. (2005) Perceptions of fatigue in rheumatoid arthritis: Overwhelming, uncontrollable, ignored. In: BSR/BHPR Annual Conference, Birmingham, UK, April 2005, Birmingham, UK, 20th April, 2005.

Cockshott, Z., Hewlett, S., Almeida, C., Richards, P., Lowe, R. and Kirwan, J. R. (2005) Rheumatoid arthritis patient education in the UK – what is on offer and how is it delivered. In: British Society for Rheumatology Annual Conference, Birmingham, UK, April 2005, Birmingham, UK, 20 April 2005.

Almeida, C., Hewlett, S., Clarke, B., Kay, L., Ryan, S., Chadwick, A. and Hammond, A. (2005) Rheumatological education for undergraduate nursing, physiotherapy and occupational therapy students in the UK. In: British Society for Rheumatology Annual Conference, Birmingham, UK, April 2005, Birmingham, UK, 20th April, 2005.

Hehir, M., Hewlett, S. and Kirwan, J. R. (2005) Measuring fatigue in RA: A systematic review of the scales. In: British Society for Rheumatology Annual Conference, Birmingham, UK, April 2005, Birmingham, UK, 19th April, 2005.

Hewlett, S., Hehir, M., Kirwan, J. R., Tipler, S. and Kitchen, K. (2004) The personal impact HAQ: Sensitivity to change of a measure of the impact of disability. In: American College of Rheumatology Annual Conference, San Antonio, USA, November 2004, San Antonio, USA, 10th November, 2004.

Hewlett, S., Kirwan , J. R., Mitchell, K., Hehir, M., Pollock, J., Memel, D., Bennett, B. and Blair, P. (2004) 6 year RCT of patient-initiated review versus regular physician-initiated follow-up in RA. In: American College of Rheumatology Annual Conference, Orlando, USA, November 2004, Orlando, USA, 1st November, 2004.

Hewlett, S., Carr, A., Ryan, S., Kirwan, J. R., Richards, P., Creamer, P., Carr, M. and Hughes, R. (2004) Pain is not always the priority: Rheumatoid arthritis patients value other outcomes. In: American College of Rheumatology Annual Conference, San Antonio, USA, November 2004, San Antonio, USA, 1st November, 2004.

Mitchell, K., Hewlett, S., Kirwan, J. R., Hehir, M., Memel, D., Blair, P., Tipler, S., Haynes, J. and Pollock, J. (2004) Patient-initiated review: Specific helpline support is required. In: American College of Rheumatology Annual Conference, San Antonio, USA, November 2004, San Antonio, USA, 1st November, 2004.

Hewlett, S., Cockshott , Z., Byron, M., Kitchen, K., Tipler, S., Pope, D. and Hehir, M. (2004) Perceptions of fatigue in rheumatoid arthritis: Overwhelming, uncontrollable, ignored. In: American College of Rheumatology Annual Conference, San Antonio, USA, November 2004, San Antonio, USA, 1st November, 2004.

Brown, S. J., McCabe, C. S., Hewlett, S., McDowell, J., Cushnaghan, J., Breslin, A., Stafford, S. and Carmichael, C. R. (2004) Rheumatology telephone helplines: Patient and health professional requirements. In: American College of Rheumatology Annual Conference, San Antonio, USA, November 2004, San Antonio, USA, 1st November, 2004.

Langley, C., Memel, D., Kirwan, J. R., Pollock, J., Hewlett, S., Gubbay, D., Powell, J. and Means, R. (2004) Welfare rights services for people with arthritis integrated within primary care and hospital settings: A cost-effectiveness evaluation. In: Annual World Public Health Conference, Brighton, UK, April 2004, Brighton Conference Centre, Brighton, UK, 22nd April, 2004.

Hehir, M., Hewlett, S., Kirwan, J. R., Mitchell, K., Pollock, J., Memel, D. and Blair, P. (2004) Patient-initiated reviews and physician-initiated reviews in RA: How appropriate are they? In: British Society of Rheumatology Annual Conference, Edinburgh, Scotland, April 2004, Edinburgh, Scotland, 1st April, 2004.

Hewlett, S., de Wit, M., Richards, P., Quest, E., Hughes, R., Heiberg, T. and Kirwan, J. R. (2004) Patients and professionals as research partners: Challenges, practicalities and benefits. In: European League Against Rheumatism Annual Conference, Vienna, Austria, April 2004, Vienna, Austria, 1st April, 2004.

Hewlett, S., Kirwan, J. R., Mitchell, K., Hehir, M., Pollock, J., Memel, D., Blair, P. and Perry, M. (2004) RCT of patient-initiated review versus regular physician-initiated follow-up in rheumatoid arthritis, extended to 6 years. In: British Society of Rheumatology/British Health Professionals Conference, Edinburgh, Scotland, April 2004, Edinburgh, Scotland, 1st April, 2004.

Langley, C., Memel, D. S., Kirwan, J. R., Pollock, J., Hewlett, S., Gubbay, D. and Powell, J. (2004) Using the health assessment questionnaire and welfare benefits advice to help people disabled through arthritis to access financial support. In: British Society of Rheumatology Annual Conference, Edinburgh, Scotland, April 2004, Edinburgh, Scotland, 1st April, 2004.

Kirwan, J. R. and Hewlett, S. (2003) Perceived and actual change in disability in rheumatoid arthritis: Dissatisfaction and impact. In: European League against Rheumatism Annual Conference, Lisbon, Portugal, May 2003, Lisbon, Portugal, 1 May 2003.

Hewlett, S. and Kirwan, J. R. (2003) Social support in rheumatoid arthritis: Self-esteem, mood and life dissatisfaction. In: European League Against Rheumatism Annual Conference, Lisbon, Portugal, May 2003, Lisbon, Portugal, 1 May 2003.

Hughes, R., Hewlett, S., Carr, A., Mitchell, K., Ryan, S., Carr, M. and Kirwan, J. R. (2002) Patient priorities for outcomes in rheumatoid arthritis. In: American College Rheumatology Annual Conference, New Orleans, USA, November 2002, New Orleans, USA, 1 November 2002.

Hughes, R., Hewlett, S., Carr, A., Mitchell, K., Ryan, S., Carr, M. and Kirwan, J. R. (2002) How do patients with rheumatoid arthritis decide that a treatment is working? In: American College of Rheumatology Annual Conference, New Orleans, USA, October 2002, New Orleans, USA, 1 October 2002.

Hewlett, S., Cockshott, Z., Duddy, J., Hehir, M., Lock, V. and Mitchell, K. (2002) Anxiety is more common than depression in arthritis. In: British Society for Rheumatology Annual Conference, Brighton, UK, 8th April, 2002.

Milton, H., Kirwan, J. R. and Hewlett, S. (2002) Fatigue in rheumatoid arthritis. In: British Society of Rheumatology Annual Conference, Brighton, UK, 1st April, 2002.

Mitchell, K., Hewlett, S., Hehir, M., Kirwan, J. R., Pollock, J., Memel, D. and Bennett, B. (2001) Is it safe for patients with rheumatoid arthritis to have no regular follow-up for 4 years? In: American College of Rheumatology Annual Conference, 1st November, 2001, San Francisco, USA , San Francisco, USA, 1st November, 2001.

Thesis

Hewlett, S. (2000) Value, disability and personal impact in rheumatoid arthritis. PhD, University of Bristol.

Hewlett, S. (1994) Consent to research? Masters, University of Wales.

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