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Article

Hewlett, S. , Choy, E. and Kirwan, J. R. (2012) Furthering our understanding of fatigue in rheumatoid arthritis. Journal of Rheumatology, 39 (9). pp. 1775-1777. ISSN 0315-162X

Hewlett, S. , Chalder, T. , Choy, E. , Cramp, F. A. , Davis, B. , Dures, E. , Nicholls, C. and Kirwan, J. R. (2011) Fatigue in rheumatoid arthritis: Time for a conceptual model (Editorial). Rheumatology, 50 (6). pp. 1004-1006. ISSN 1462-0324

Kirwan, J. R. , Boonen, A. and Hewlett, S. (2011) OMERACT 10 patient perspective virtual campus: Valuing health; measuring outcomes in RA fatigue, sleep, arthroplasty, systemic sclerosis; and the clinical significance of changes in health. Journal of Rheumatology, 38 (8). pp. 1728-1734. ISSN 0315-162X

Kirwan, J. R. , Fries, J. , Hewlett, S. , Osborne, R. , Newman, S. , Ciciriello, S. , van de Laar, M. , Dures, E. , Minnock, P. , Heiberg, T. , Sanderson, T. , Flurey, C. , Leong, A. , Montie, P. and Richards, P. (2011) Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient reported outcomes. Journal of Rheumatology, 38 (8). pp. 1711-1715. ISSN 0315-162X

Kirwan, J. R. , Fries, J. and Hewlett, S. (2011) Patient perspective: Choosing or developing instruments. Journal of Rheumatology, 38 (8). pp. 1716-1719. ISSN 0315-162X

Nicklin, J. , Cramp, F. A. , Kirwan, J. R. , Urban, M. and Hewlett, S. (2010) Collaboration with patients in the design of patient reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis. Arthritis Care & Research, 62 (11). pp. 1552-1558. ISSN 0004-3591

Almeida, C. , Hewlett, S. , Kirwan, J. R. , Cramp, F. A. , Chalder, T. and Choy, E. (2010) Biologic interventions for fatigue in rheumatoid arthritis (Protocol). Cochrane Database of Systematic Reviews, 1 (CD0083).

Nicklin, J. , Cramp, F. A. , Kirwan, J. R. , Urban, M. and Hewlett, S. (2010) Measuring fatigue in RA: Evaluation of the Bristol RA fatigue multi-dimensional questionnaire, visual analogue and numerical rating scales (BRAF). Arthritis Care & Research, 63 (511). S263-S286. ISSN 0004-3591

Kirwan, J. R. and Hewlett, S. (2007) Patient perspective workshop: Reasons and methods for measuring fatigue in rheumatoid arthritis. Journal of Rheumatology, 34. pp. 1171-1173. ISSN 0315-162X

Kirwan, J. R. , Minnock, P. , Adebajo, A. , Bresnihan, B. , Choy, E. , De Wit, M. , Hazes, M. , Richards, P. , Saag, K. , Suarez-Almazor, M. , Wells, G. and Hewlett, S. (2007) Patient perspective workshop: fatigue as a recommended patient-centred outcome measure in rheumatoid arthritis. Journal of Rheumatology, 34 (5). pp. 1174-1177. ISSN 0315-162X

Hewlett, S. , Hehir, M. and Kirwan, J. R. (2007) Measuring fatigue in rheumatoid arthritis: A systematic review of scales in use. Arthritis & Rheumatism, 57 (3). pp. 429-439. ISSN 0004-3591

Hewlett, S. , De Wit, M. , Richards, P. , Quest, E. , Hughes, R. , Heiberg, T. and Kirwan, J. R. (2006) Patients and professionals as research partners: Benefits, challenges and practicalities. Arthritis & Rheumatism (Arthritis Care & Research), 55 (4). pp. 676-680. ISSN 0893-7524

Pope, D. , Tipler, S. , Kirwan, J. R. and Hewlett, S. (2005) Implementing a patient-led, nurse-supported service in a long-term condition. Nursing Times, 101 (49). pp. 28-31. ISSN 0954-7762

Kirwan, J. R. , Hewlett, S. , Heiberg, T. , Hughes, R. , Carr, M. , Hehir, M. , Kvien, T. , Minnock, P. , Newman, S. , Quest, E. , Taal, E. and Wale, J. (2005) Incorporating the patient perspective into outcome assessment in rheumatoid arthritis – progress at OMERACT 7. Journal of Rheumatology, 32. pp. 2250-2256. ISSN 0315-162X

Kirwan , J. R. , Ahlmen, M. , de Wit, M. , Heiberg, T. , Hehir, M. , Hewlett, S. , Katz, P. , Minnock, P. , Quest, E. and Richards, P. (2005) Progress since OMERACT 6 on including the patient perspective in rheumatoid arthritis outcome assessment. Journal of Rheumatology, 32 (11). pp. 2246-2249. ISSN 0315-162X

Hewlett, S. , Carr, M. , Ryan, S. , Kirwan, J. R. , Richards, P. , Carr, A. and Hughes, R. (2005) Outcomes generated by patients with rheumatoid arthritis: how important are they? Musculoskeletal Care , 3 (3). pp. 131-142. ISSN 1478-2189

Kirwan, J. R. , Hewlett, S. , Cockshott, Z. and Barrett, J. (2005) Clinical and psychological outcomes in a randomised controlled clinical trial of patient education in rheumatoid arthritis. Musculoskeletal Care , 3 (1). pp. 1-16. ISSN 1478-2189

Hewlett, S. , Kirwan, J. R. , Pollock, J. , Mitchell, K. , Hehir, M. , Blair, P. , Memel, D. and Perry, M. (2005) Patient initiated outpatient follow up in rheumatoid arthritis: Six year randomised controlled trial. British Medical Journal (BMJ), 330 (7484). pp. 171-175. ISSN 0959-8138

Powell, J. , Langley, C. , Kirwan, J. R. , Gubbay, D. , Memel, D. , Pollock, J. , Means, R. and Hewlett, S. (2004) Welfare rights services for people disabled with arthritis integrated in primary care and hospital settings: set-up costs and monetary benefits. Rheumatology, 43 (9). pp. 1167-1172. ISSN 1462-0324

Langley, C. , Memel, D. , Kirwan, J. R. , Pollock, J. , Hewlett, S. , Gubbay, D. and Powell, J. (2004) Using the Health Assessment Questionnaire and welfare benefits advice to help people disabled through arthritis to access financial support. Rheumatology, 43 (7). pp. 863-868. ISSN 1462-0324

Wells, G. , Anderson, J. , Boers, M. , Felson, D. , Heilberg, T. , Hewlett, S. , Johnson, K. , Kirwan, J. R. , Lassere, M. , Robinson, V. , Shea, B. , Simon, L. , Strand, V. , Van Riel, P. and Tugwell, P. (2003) MCID/Low disease activity state workshop: Summary, recommendations and research agenda. Journal of Rheumatology, 30 (5). pp. 1115-1118. ISSN 0315-162X

Kirwan, J. R. , Heidberg, T. , Hewlett, S. , Hughes, R. , Kvien, T. , Ahlmen, M. , Boers, M. , Minnock, P. , Saag, K. , Shea, B. , Suarez Almazor, M. and Taal, E. (2003) Outcomes from the patient perspective workshop at OMERACT 6. Journal of Rheumatology, 30 (4). pp. 868-872. ISSN 0315-162X

Carr, A. , Hewlett, S. , Hughes, R. , Mitchell, H. , Ryan, S. , Carr, M. and Kirwan, J. R. (2003) Rheumatology outcomes: The patient's perspective. Journal of Rheumatology, 30 (4). pp. 880-883. ISSN 0315-162X

Kirwan, J. R. , Mitchell, K. , Hewlett, S. , Hehir, M. , Pollock, J. , Memel, D. and Bennett, B. (2003) Clinical and psychological outcome from a randomized controlled trial of patient-initiated direct-access hospital follow-up for rheumatoid arthritis extended to 4 years. Rheumatology, 42. pp. 422-426. ISSN 1462-0324

Hewlett, S. , Smith, A. and Kirwan, J. R. (2002) Measuring the meaning of disability in rheumatoid arthritis: The Personal Impact Health Assessment Questionnaire (PI HAQ). Annals of Rheumatic Disease, 61 (11). pp. 986-993. ISSN 0003-4967

Memel, D. , Kirwan, J. R. , Langley, C. , Hewlett, S. and Hehir, M. (2002) Prediction of succcessful application for disability benefits using the Health Assessment Questionnaire for people with arthritis. Rheumatology, 41 (1). pp. 100-102. ISSN 1462-0324

Hewlett, S. , Cockshott, Z. , Kirwan, J. R. , Barrett, J. , Stamp, J. and Haslock, I. (2001) Development and validation of a self-efficacy scale for use in British patients wih rheumatoid arthritis (RASE). Rheumatology, 40 (11). pp. 1221-1230. ISSN 1462-0324

Hewlett, S. , Smith, A. and Kirwan, J. R. (2001) Values for function in rheumatoid arthritis: Patients, professionals and public. Annals of the Rheumatic Diseases (ARD), 60 (10). pp. 928-933. ISSN 0003-4967

Hehir, M. , Hewlett, S. , Mitchell, K. , Kirwan, J. R. , Memel, D. , Pollock, J. and Bennett, B. (2001) What happens in rheumatoid arthritis outpatient clinics? Rheumatology, 40 (S1). S140. ISSN 1462-0324

Hewlett, S. , Kirwan, J. R. , Mitchell, K. , Hogg, J. , Korendovych, E. and Paine, T. (2000) Patient-initiated hospital follow-up for rheumatoid arthritis. Rheumatology, 39. pp. 990-997. ISSN 1462-0324

Hewlett, S. and Kirwan, J. R. (1995) Dissatisfaction with function in rheumatoid arthritis. Quality of Life, 4. p. 8.

Hewlett, S. , Young, P. and Kirwan, J. R. (1995) Dissatisfaction, disability and rheumatoid arthritis. Arthritis Care & Research, 8 (1). pp. 4-9. ISSN 0004-3591

Hewlett, S. , Haynes, J. , Shepstone, L. and Kirwan, J. R. (1995) Rheumatoid arthritis patients cannot accurately report signs of inflammatory activity. Rheumatology, 34. pp. 547-553. ISSN 1462-0324

Conference or Workshop Item

Lowe, R. , Cockshott, Z. , Almeida, C. , Richards, P. , Greenwood, R. , Kirwan, J. R. and Hewlett, S. (2006) Associations between changes in self-efficacy appraisals, coping and emotions in rheumatoid arthritis. In: BSR/BHPR Conference, Glasgow, Scotland, May 2006, Glasgow, Scotland, 3 May 2006.

Hewlett, S. , Kirwan, J. R. and Richards, P. (2006) A model for collaboration between researchers and patients. In: RCN International Research Conference, York, UK, March 2006, York, UK, 21 March 2006.

Hewlett, S. , Cockshott, Z. , Almeida, C. , Richards, P. , Lowe, R. , Greenwood, R. and Kirwan, J. R. (2005) Sensitivity to change of the rheumatoid arthritis self-efficacy scale (RASE). In: American College of Rheumatology Annual Conference, San Diego, USA, November 2005, San Diego, USA, 1 November 2005.

Lowe, R. , Hewlett, S. , Cockshott, Z. , Almeida, C. , Richards, P. and Kirwan, J. R. (2005) Changes in self-efficacy, coping and emotions: Their associations among rheumatoid arthritis patients participating in routine self-management programmes. In: European Health Psychology Society Annual Conference, Galway, Ireland, October 2005, Galway, Ireland, 1 October 2005.

Cockshott, Z. , Hewlett, S. , Almeida, C. , Richards, P. , Lowe, R. and Kirwan, J. R. (2005) Rheumatoid arthritis patient education in the UK – what is on offer and how is it delivered. In: British Society for Rheumatology Annual Conference, Birmingham, UK, April 2005, Birmingham, UK, 20 April 2005.

Hehir, M. , Hewlett, S. and Kirwan, J. R. (2005) Measuring fatigue in RA: A systematic review of the scales. In: British Society for Rheumatology Annual Conference, Birmingham, UK, April 2005, Birmingham, UK, 19 April 2005.

Hewlett, S. , Hehir, M. , Kirwan, J. R. , Tipler, S. and Kitchen, K. (2004) The personal impact HAQ: Sensitivity to change of a measure of the impact of disability. In: American College of Rheumatology Annual Conference, San Antonio, USA, November 2004, San Antonio, USA, 10 November 2004.

Hewlett, S. , Kirwan , J. R. , Mitchell, K. , Hehir, M. , Pollock, J. , Memel, D. , Bennett, B. and Blair, P. (2004) 6 year RCT of patient-initiated review versus regular physician-initiated follow-up in RA. In: American College of Rheumatology Annual Conference, Orlando, USA, November 2004, Orlando, USA, 1 November 2004.

Hewlett, S. , Carr, A. , Ryan, S. , Kirwan, J. R. , Richards, P. , Creamer, P. , Carr, M. and Hughes, R. (2004) Pain is not always the priority – rheumatoid arthritis patients value other outcomes. In: American College of Rheumatology Annual Conference, San Antonio, USA, November 2004, San Antonio, USA, 1 November 2004.

Mitchell, K. , Hewlett, S. , Kirwan, J. R. , Hehir, M. , Memel, D. , Blair, P. , Tipler, S. , Haynes, J. and Pollock, J. (2004) Patient-initiated review: Specific helpline support is required. In: American College of Rheumatology Annual Conference, San Antonio, USA, November 2004, San Antonio, USA, 1 November 2004.

Langley, C. , Memel, D. , Kirwan, J. R. , Pollock, J. , Hewlett, S. , Gubbay, D. , Powell, J. and Means, R. (2004) Welfare rights services for people with arthritis integrated within primary care and hospital settings: A cost-effectiveness evaluation. In: Annual World Public Health Conference, Brighton, UK, April 2004, Brighton Conference Centre, Brighton, 22 April 2004.

Hehir, M. , Hewlett, S. , Kirwan, J. R. , Mitchell, K. , Pollock, J. , Memel, D. and Blair, P. (2004) Patient-initiated reviews and physician-initiated reviews in RA: How appropriate are they? In: British Society of Rheumatology Annual Conference, Edinburgh, Scotland, April 2004, Edinburgh, Scotland, 1 April 2004.

Hewlett, S. , de Wit, M. , Richards, P. , Quest, E. , Hughes, R. , Heiberg, T. and Kirwan, J. R. (2004) Patients and professionals as research partners: Challenges, practicalities and benefits. In: European League Against Rheumatism Annual Conference, Vienna, Austria, April 2004, Vienna, 1 April 2004.

Hewlett, S. , Kirwan, J. R. , Mitchell, K. , Hehir, M. , Pollock, J. , Memel, D. , Blair, P. and Perry, M. (2004) RCT of patient-initiated review versus regular physician-initiated follow-up in rheumatoid arthritis, extended to 6 years. In: British Society of Rheumatology/British Health Professionals Conference, Edinburgh, Scotland, April 2004, Edinburgh, Scotland, 1 April 2004.

Langley, C. , Memel, D. S. , Kirwan, J. R. , Pollock, J. , Hewlett, S. , Gubbay, D. and Powell, J. (2004) Using the health assessment questionnaire and welfare benefits advice to help people disabled through arthritis to access financial support. In: British Society of Rheumatology Annual Conference, Edinburgh, Scotland, April 2004, Edinburgh, Scotland, 1 April 2004.

Kirwan, J. R. and Hewlett, S. (2003) Perceived and actual change in disability in rheumatoid arthritis: Dissatisfaction and impact. In: European League against Rheumatism Annual Conference, Lisbon, Portugal, May 2003, Lisbon, Portugal, 1 May 2003.

Hewlett, S. and Kirwan, J. R. (2003) Social support in rheumatoid arthritis: Self-esteem, mood and life dissatisfaction. In: European League Against Rheumatism Annual Conference, Lisbon, Portugal, May 2003, Lisbon, Portugal, 1 May 2003.

Hughes, R. , Hewlett, S. , Carr, A. , Mitchell, K. , Ryan, S. , Carr, M. and Kirwan, J. R. (2002) Patient priorities for outcomes in rheumatoid arthritis. In: American College Rheumatology Annual Conference, New Orleans, USA, November 2002, New Orleans, USA, 1 November 2002.

Hughes, R. , Hewlett, S. , Carr, A. , Mitchell, K. , Ryan, S. , Carr, M. and Kirwan, J. R. (2002) How do patients with rheumatoid arthritis decide that a treatment is working? In: American College of Rheumatology Annual Conference, New Orleans, USA, October 2002, New Orleans, USA, 1 October 2002.

Milton, H. , Kirwan, J. R. and Hewlett, S. (2002) Fatigue in rheumatoid arthritis. In: British Society of Rheumatology Annual Conference, Brighton, UK, 1st April, 2002.

Mitchell, K. , Hewlett, S. , Hehir, M. , Kirwan, J. R. , Pollock, J. , Memel, D. and Bennett, B. (2001) Is it safe for patients with rheumatoid arthritis to have no regular follow-up for 4 years? In: American College of Rheumatology Annual Conference, 1st November, 2001, San Francisco, USA , San Francisco, USA, 1st November, 2001.